Holiday Caravan Rental

Dudley Kidney Patients Association

Dudley KPA have three 6 berth caravans for rent, all on lovely sites which we are happy to let to any kidney patient, together with up to 5 family members. This is of course subject to availability.

The caravans are situated at Goodrington in Devon, Burnham-on-Sea in Somerset and we  have just replaced our old one in the Cotswolds, near Cirencester, with a brand new one ready for next season.

The sites are all excellent with lots of facilities which are open from Easter until the end of October. I start taking bookings in February but anyone wishing to enquire can email at judithsidaway@aol.com at any time for more information or to request a booking form.

Our own patients tend to book most of July and August but there are always plenty of other dates available.

Haemodialysis patients wishing to go must organise their dialysis sessions through their own Renal Unit but check with Judith first that the date is available. Peritoneal patients can arrange their own fluid delivery etc. but likewise, please check with Judith that the dates are available.

Judith Sidaway, Secretary Dudley KPA


The following information was written by Sister Julienne Markland, Sister Louise Hall & Sister Madeline Pipes and was sponsored by Baxter Healthcare Ltd. and the Lancashire & South Cumbria Kidney Patients Association. If you have any queries about holidaying on dialysis, your point of contact at the Royal Preston Hospital is Gill Mercer.


HOLIDAYS

Something many of us take for granted and look forward to at least once a year. But holidays when you are on dialysis?

  • You might think it's just too complicated to arrange.
  • No-one will insure you, too much extra luggage to take, what about my diet?
  • What will the accommodation staff think?
  • What if I'm taken ill while i'm away?

There are many more worries and concerns. OK, so it isn't just as easy as before, but many dialysis patients and their families have proved that these problems can be overcome, with a bit of forward planning and organisation. Most have started by going away for a short break, not too far from home. Finding this to be successful, their confidence has been boosted and they have gone on to more adventurous holidays, using caravans, coaches, flying abroad, staying in hotels, guest houses, apartments, and even canal boats! Long journeys and unusual destinations are possible to arrange. Several patients have been on cruises! So please read on.

The following information is designed to help answer your questions, give you advice and ideas, and, above all, to help you to enjoy going away on holiday. 

CAPD & APD PATIENTS

Your Dialysis Liaison Officer or dialysis staff will be responsible for arranging the delivery of CAPD fluid only. APD patients, fluid and cassette-lines will be delivered to your destination. You will be given the name and address of the nearest dialysis unit for your reference. Haemodialysis Patients Your dialysis liaison officer will be responsible for arranging your haemodialysis sessions. However, don't go to them to ask advice about where to go. You decide where you would like to go and when, and then contact the relevant staff member about arrangements

* How long is the journey
* Can I drive myself or would I use public transport
* If using i.e. a coach or a train could I manage the extra luggage?
* Is it a hilly place?
* How far is the accommodation from the town center / shops?
* Are there lifts?
* Will there be a private bathroom with the room?
* Is there a hospital with a Dialysis Unit within a rasonable distance?

"Make sure you go to places with normal hygiene standards"

The type of accommodation is up to you - friends/family homes, self catering, hotels, caravans. For patients on APD, the appropriate APD/CAPD lead will be sent to you by the suppliers for use abroad.

4* hotel accommodation abroad have electricity generators installed preventing power cuts, an advantage for patients using APD therapy.

Haemodialysis Patients must book their dialysis sessions before booking the holiday. Once you have provisionally chosen, speak to your dialysis unit about deliveries or booking the haemodialysis sessions. You will need to have an exact accommodation address and dates. Details of your dialysis sessions, and prescription, will be sent to the dialysis unit you will be using. Keep a copy of this on your person.

NOTICE REQUIRED IN THIS COUNTRY

CAPD Patients 3 to 4 weeks notice is usually all that is required.

NOTICE REQUIRED ABROAD

For CAPD patients in Europe, at least 8 weeks notice is required. Further afield needs at least 3 months notice.

A TIP FOR CAPD / APD PATIENTS

You will need to let your accommodation know that some medical supplies will be delivered a day or two before you arrive. If you are going abroad, we recommend that you inform the Travel Agent and also the Travel Company that supplies are expected. The resort reps will then look out for them and can inform the delivery company if there is any problem. You must check before you leave home that the fluid has arrived.

COST

For CAPD patients There is rarely any cost to the patient for having supplies delivered. If you are on APD you can obtain a letter from our unit stating you are carrying essential medical equipment (APD machine). This will prevent you from paying extra baggage allowance. Dialysis sessions in this country are paid for by your purchasing authority. In the European Union a completed eHICS form will guarantee payment for dialysis at public hospitals but will not cover the cost of transport to and from your holiday resort. You will have to pay, and organise this for yourself. Some dialysis units are private clinics and these do not accept the HICS form, therefore, you would have to pay for your own dialysis.We are unable to reimburse this cost. If travelling outside the European Union, you have to pay the full cost of the treatment, again without reimbursement.

INSURANCE

Don't do the final booking of your holiday until you have taken out insurance. Your doctor will need to give you a letter saying that you are fit to travel before you can be insured. Being on dialysis means that you have a pre-existing medical condition. Standard holiday insurance will rarely cover this. Travel Agents are very keen to sell you their insurance, but the insurance company will almost certainly turn you down.

 You need to shop around for insurance that will cover you for any kidney related need, and, if necessary, to cover the cost of bringing you and your family home in an emergency. If you are on a waiting list for an operation, including the Transplant List, then you will require extra insurance to cover cancellation. If you are able to stay on the transplant list remember to leave the dates you are away for and contact numbers with the CAPD/Renal Unit. If you go abroad on holiday you will be suspended from the Transplant list for the duration of your holiday. The National Kidney Federation can give advice on Insurance Companies or ask your Dialysis Unit/ Community Nurse for other patients' experiences. Do complete eHICS forms. These are forms for use when travelling in European Union countries. This form will entitle you to free hospital treatment for any minor health emergency. Choose an individual separate eHICS for your use and one for each member of the family. Take at least one photocopy. Before you go away, get a form from the post Office, complete it and get them to stamp it. It will cost you nothing. All travellers, not just dialysis patients, are advised to have these A cover letter for travelling will be given to you explaining that you will be cattying medical supplies

THERE ARE SEVERAL INSURANCE COMPANIES WHO SHOULD BE ABLE TO GIVE YOU A GOOD QUOTE ON THE NKF WEBSITE ALTHOUGH THEY ARE IN NO WAY ENDORSED BY EITHER THE NKF OR THE LSCKPA. CLICK THE LINK BELOW TO GO TO THE SITE.

http://www.kidney.org.uk/help/holidays/holidays-tips-insure/

On CAPD / APD Make a list of everything you use for dialysis so as not to forget anything.

  1. Bag warmer - either your own, or a shoulder bag type borrowed from the Unit.
  2. Floor scales - essential to fit these in your luggage as a wayward weight can ruin your holiday.
  3. Bag weighing scales.
  4. Bag stand or bucket or plastic carrier bag.
  5. Coat hanger (metal or wood) for draining in, azowipes, hibisol, hibiscrub, chlorohexadine/normasol, paper towels or kitchen roll
  6. Bottle plungers x 3
  7. Two pairs of scissors - plus a bag ripper if used
  8. Gloves - take sufficient to allow for using a pair of gloves for every exchange, in case of cuts, grazes or blisters to fingers or hands
  9. Masks (in case of colds, coughs or sore throat)
  10. Mepore dressings & tape
  11. Dressing packs - 3 for one week, 7 for two weeks (but remember to take extra if you are planning to go swimming, or if it is going to be very hot)
  12. Yellow plastic rubbish bags for work surface
  13. Black rubbish bags
  14. Take a spare roll of tape so that you can fold up your packing so the waste is less bulky, put into black bin liners and dispose as normal waste
  15. Line change equipment and instructions in case of disconnected line or hole in line
  16. Antibiotics and appropriate equipment including instructions for use provided for patients who are either going on a cruise or to a destination a long distance from a dialysis unit in case of peritonitis
  17. Please ask your community nurse to confirm which system you are on
  18. Solo - minicaps, white shields, 2 clamps + 2 extra
  19. System 11 - K shields, 2 clamps + 2 extra, 2 x 500ml bags
  20. APD/CCPD - (home choice machine) drainage bags, drainage lines, white shields, minicaps, 2 clamps + 2 extra clamps, optichoice caps, appropriate APD lead
  21. A backup of Solo CAPD fluid will also be sent to your destination Solo procedure
  22. UV Flash - UV flash box, green shields, blue clamps + 2 extra
  23. Standard Fresenius - isopropyl sprays (blue clamps xl)
  24. Stay Safe - Stay safe block, staysafe caps, blue clamps x 2

Make sure you take enough of the items you need, but try not to overdo it. If you are not sure how much you generally use over a week or a fortnight, then as soon as you open a new container, write the date on it and see how long it lasts - that will give you a rough guide as to how much you need. Although at first glance the list seems a long one, all these items will fit into a large holdall. Ensure you have enough for the whole holiday period.

EPO

Store in a cool bag.
First Aid kit - (You can make up your own)
Sunscreen - factor 25
Your medication -
Medication Card for 1 day
 

HAEMODIALYSIS

The following information is designed to help answer your questions, give you advice and ideas, and, above all, help you enjoy going away on holiday.

*****

Dialysis sessions in this country are paid for by your purchasing authority. In the European Union a valid eHICS card will guarantee payment for dialysis at public hospitals but will not cover the cost of transport to and from your holiday resort. You wil have to pay, and organise this for yourself. Some dialysis units are private clinics and these do not accept the eHICS card, therefore, you would have to pay for your own dialysis. We are unable to reimburse this cost. If travelling outside the European Union, you have to pay the full cost of the treatment, again without reimbursement.

*****

INSURANCE

Don't do the final booking of your holiday until you have taken out insurance. Your doctor will need to give you a letter saying that you are fit to travel before you can be insured. Being on dialysis means that you have a pre-existing medical condition. Standard holiday insurance will rarely cover this. Travel Agents are very keen to sell you their insurance, but the insurance company will almost certainly turn you down.

You need to shop around for insurance that will cover you for any kidney related need, and, if necessary, to cover the cost of bringing you and your family home in an emergency. If you are on a waiting list for an operation, including the Transplant List, then you will require extra insurance to cover cancellation. If you are able to stay on the transplant list remember to leave the dates you are away for and contact numbers with the Renal Unit. If you go abroad on holiday you will be suspended from the Transplant list for the duration of your holiday. The National Kidney Federation can give advice on Insurance Companies or ask your Dialysis Unit/ Community Nurse for other patients' experiences. Do complete eHICS forms. These are forms for use when travelling in European Union countries. This form will entitle you to free hospital treatment for any minor health emergency. Choose an individual separate eHICS for your use and one for each member of the family. Take at least one photocopy. Before you go away, get a form from the post Office, complete it and get them to stamp it. It will cost you nothing. All travellers, not just dialysis patients, are advised to have these.

EQUIPMENT

Depending on your Unit / the Holiday Unit, you may need to take the followuing:- 

* A dialyser for each dialysis session + 1 in case of any faults

* Lignocaine injections if used

* Local anaesthetic cream, if used

* Heparin

* Your medication

* EPO (stored in a cool bag)Your dialysis liason officer/nurse will be able to tell you what you need to take with you.

* First Aid kit - (You can make up your own)

* Sunscreen - factor 25

*****

ADDITIONAL NOTE

Dave Ambler searched the internet for his first holiday on Haemodialysis in 2012 and found a very helpful website run by a former carer whose wife sadly passed away some years ago.

Dave said, “The address of the web site is www.globaldialysis.com On the website are links to an insurer who I must mention. In the past, I have taken out many insurance policies covering my diabetes and renal failure but in the past few years my health has deteriorated to such an extent that last year, I found it almost impossible to get insurance. The insurance company linked to this web site offered me 3 packages, a Silver package, a Gold one and a Platinum one, each with varying degrees of cover.

You don't need to register on the site to use their features although I strongly recommend that you do register. I must stress however that this is my opinion and my opinion only and as such, it does not reflect the views of the Association or its editors”

.